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I wanted to thank you for the very informative and 'straight up' site, I needed that.  I found out this week that my fiancee has hep C. He is currently in prison and has about 14 months left. Getting info from them is harder than pulling teeth... they haven't even told us what genotype yet.... I needed facts without too much mumbo jumbo. He has already decided to push for treatment asap, though we don't know if he will be able to get it there.  The only things he has been told by the medical staff is that he is otherwise very healthy and it "seems" his liver is doing fine. ....

Thank you again... Jennifer, Colorado.

I don't do chat rooms- I don't do blogs- my old man didn't believe in them-I'm taking a shot in the dark here- wish i found this site before-Tired of the blah-blah-blah from people who don't get it- if you ride, got tattoos and don't have medical insurance you are screwed- are essentially profiled-it does not matter how nice you are or what property  you own- you could be an outstanding member of the community- you got hep- you are a loser- that is how you are treated- this dehumanizing treatment destroyed my man- most websites are blah-blah-blah for ice cream bikers- he was the real deal- our live life for the moment- in the face of dehumanizing treatment did not work- he is gone- wish you had a chat room...or something...cool sight never-the-less Signed,  Dirtbomb Girl

Here's one thing I think needs to be mentioned - but have not seen anyone mention.

Being an IV user it was thought that (because of HIV) if you were fucking it was OK to share needles as well, because you'd get it either way. But with HEP C that's not the case because it's not normally transmitted through sex. Out of ignorance we didn't know that. So I think message of that fact needs to be spread far and wide. "Never share needles" even if you are having sex. I know because everyone I know (and been with) has the rare genotype 3 for this area in the northwest US.

We have a county needle exchange program here so there's no excuse for sharing. In fact here in Washington it's legal (if over 18 years old) to possess sterile syringes. I think the whole country should adopt this practice, but include everyone - not just those 18 and older.

Donald Schulze, Tacoma, WA.

"I feel it's important to share hope and I want people not to be so afraid of this even though it's a life changing issue. I am 21 years old and i worked with a hep c patient. I was exposed to the virus at 18 and I decided to get myself tested for every STD. The results came back and I had a hep c reaction. Meaning I was expose to the virus. I was so afraid and felt like such a bad son and blamed myself for not being careful. So then they took blood to find out my geno type. I was exposed 3 years ago. I went back for the results and the doctor look at me and said. Congradulations. Your the 1% of those who build an immunity on their own. Your undetected for 3 years and chances are your body rejected the virus. My point is that these kind of things are there to value your life and fight harder but are no death sentence. I thank the virgin Mary because I made some promises I will keep. But don't let this beat you. Everyone is different. So don't let every story you read scare you. Live and know what that means. And as for me. I'm now curious about micro biology and who knows. Maybe I can study my own blood and try to mimic that. It doesn't kill to dream.

"Fight for that feeling of relief because I tell you. Nothing has ever felt this good

"Bmack89"

Psst!  Hep C is not an STD.  But i like your other idea - the mimicking a person's blood who recovers on their own, which is much higher than 1%.  Unfortunately it resides in the mechanism of the immune system.  Check it out in our Q & A pages.  Take'r easy.  -- ed.

 

 

 

 

 

Hep C Straightup at Hawgstock '07

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Hey folks, damned fine job y'all are doin.  I am approaching week 12, treatment, wondering where y'all are gettin the energy?  This shit is really knockin my dick in the dirt.  Glad to find you.  I am learnin a lot, cause straightup rocks!

We may not get out alive, but we can ride it out, if that's what it takes to survive!  Carry on ... shinin on!

Glowman, Canada

Thanks Glowman!  Hey, i don't write this stuff on treatment.  Been there, tried that.  Knocked mine in the dirt, too - and i don't even have one!  LOL  Take'r easy.  -- ed.

ya know the 'nothin happens by mistake' rule? well, looks like finding you all was meant to be. i did not intend to get on the pc tonight, but doing my best to get out of this funk i did and found you!   THANK YOU for letting me know again that i'm not alone. been fighting this dragonlong time, no treatment (bipolar too). been in one of my black holes today. but,  do my research, see my great doc every 6 months, one day at a time.........  

not a biker, but was no flower child either. type A baby boomer trying to remember that the past is not for saving......but for learning.  this lesson takes the cake.  some days are easier than others. sorry to 'dump' on all of you, especially on the first introduction. become 'spiritually' inclined. it works for me, most times.    -GB (God Bless)

-su,  vero beach, florida

What a pure joy to find your site.  Been all over the frigging web and yours by far is the best.  I got hep C by blood transfusion back in 1972 while giving birth.  On the transplant list here in sunny Florida.  Been riding since the late 60's, had my own 45 flathead, suicide/jockey.  Now riding behind my old man.  Here's to keeping the shiny side up for all of us!  Keep up the great work, Pam (Sweet Bitch).  Beynon, Largo, FL.

Hey ya'll. I really like the page.

Both my husband & I were diagnosed with Hep C in may 2007. From what the doctor (at the time - he has now moved) we are in the 60% that if we hadn't tested for it - we would havwe never know we have it. We have had the biopseys done - normal and we do blood tests each year to check our levels. But here in Shreveport,LA there ain't too many doc's to go to so we just hang with our general md.

thanks so much.(this is a work computer) but my email is janfan1960@yahoo.com. We live in Karnack,TX. Nut i work in Shreveport, LA (about 25 miles away).

thanks again,

Jan & Eric Bodin

PSSSST!  Y'all may wanna give Tulane University a call.  If i remember correctly, they do a lot of science about hep C there.  Take'r easy.  -- ed.

i was diagnosed back in the  mid 90's and being a recovering addict/alcoholic  i dont want the syringes in my home, nor do i want the repercussions of the meds(depression) ect i have seen too many of my recovering friends, either relapse or lose thier jobs because depression kept them from functioning on their jobs, i work with sheet metal and weld equipment and i know i need to  have the  treatments but  the fear is greater than the disease for me .

 i got another biopsy for my liver in about 6 more weeks. in the meantime  thru the yrs i have been taking milk thistle and watching what i eat. if it has large amounts of iron i stay away from it. including asprin.

LITTLE BIT/LADY BIKER LISA

July 22, 2009

 Hi Everyone, I'm Gentry from Nashville, Tn. My best guess is I contacted Hep C 30 years ago from Risky Behavior for which I am responsible. After my early 20's I made lifestyle changes mostly for the better including education, career, marriage, children and Hep C Treatment. Each one of these things have required planning, goals and objectives, a lot of effort and a long hard fought battle. Being the winner I have chose to be I don't give up without a good fight. I was without a diagnoses of hepatitis until last October because of my denial of why I was ill and the treatment available. Once I realized I wanted to do the treatment and there was a cure I had blood screens and a liver biopsy performed. The results were genotype 1a with a viral load of 14 million and stage 4 liver disease. I started treatment

January 5, 2009 and expect to continue for a total of 72 weeks. This gives me my best chance of cure. Things in my life have changed but not my love of life itself. The battle of Hep C requires the help of others and you. Please get tested and seek help and treatment for yourself and the ones you love and may we all feel blessed even in the hard times. Ride Hard Gentry

 

Wanna Link
           to us?

   

Hey, greetings from the land of cheeseheads (Wisconsin).

 I have hep b&c and am going downhill fast. No family (hubby died from pneumonia w/HIV) or friends (had to leave my former life... to live to see another day). So I was thrilled to find your website. Real people, real information and humor....man, do I need humor. And straight talk. It was especially great to read your to treat or not to treat info, as most every site just assumes that you have the resources and choices to seek treatment. I can barely keep a roof over my head. I have no extra money (or insurance), went to a sliding scale clinic (was told they didn't treat hep  patients...big attitude there) and tried to get into clinical trials for over a year (NO chance with hep b&c genotype 1). By addressing those of us not going to the Mayo Clinic next week, you validate that WE are people,too. And I love the brain fog page. It is scary to have a trick brain...it goes out on me sometimes...but your light hearted games are a reminder that fun is just a click away. And they are good for me, too! Please keep up the good work.

Thank you.

Francine

Thank YOU for the great feedback - keeps me goin, grrl.  Go Vikes!  (jus had to say that)

 

    

   

            Donate!

 

Nice website, I’m HCV positive from a transfusion I received in 1988. HCV Genotype 1 and went through 12 months of treatment using Intron/Riba in 06/08. Couldn’t use Peg Intron as the third dose almost killed me. I was Virus free at 6 and 9 months but relapsed at 12 months. I am anxiously awaiting the release of telaprevir. The doc told me that summer of 2010 we start again using Telaprevir, Infragen and Ribavirin. I rode my Ultra Classic through the entire treatment and will continue to do so as long as possible.

Don’t let the virus get you down, ATTITUDE is everything!!!!

rekingiii@cox.net


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